Sunday 20 March 2011

you go out shopping for one thing and come back with more!

Hello there ,remember me? the winging one who hasn't blogged for ages because she feels crap and can't get her head around anything....well there is news ..NOT on the Thyroid side of things ,that is still untreated as l haven't been able to take ANY meds since last September which doesn't help that crap feeling..
 but l have wondered off AGAIN..
Do  you go out shopping for one thing then end up coming back with more than you went out for ?
    On Thursday 17th March  2011 between the hours of 9.30am and 11am l was formally diagnosed with LUPUS and SJOGERNS SYNDROME  l cant THANK the Louise Coote Lupus Centre at StThomas's hospital London after YEARS  enough..after years of feeling crap and stronger words that describe this bodily waste..
A nice ,sympathetic understanding  KNOWLEDGEABLE Consultant listened sympathised and said you have ...the above! l only wish that l could see someone in the same mould  who could sort out my Thyroid ..l suppose you can't have it all! or can in this case!since the appearance of the MALOR rash in February 2010 which my GP  first diagnosed as Polymorphic light eruption! the crap feeling was ther and worse..ln September  l went back winging and moaning and complaining of LOTS and my GP said he was thinking it  might be lupus....l read  about it and l was thinking it...but l was surprised none the less to get a diagnoses at my first appointment.They usually don't commit ,and give you the full bank of blood tests and  then you wait another three months to be told that the tests were inconclusive or you don't have ....
 But this time l do...
 so l have to get my head around this..read the websites and apply what l read to ME rather than browse the site not absorb anything and think l probably don't have it any way! the Sjogerns was a bolt out of the blue l thought my dry eyes ,skin and mouth were all down to my Hashi's ...
thought l would up date...thanks for reading..x